Patient-Related Issues

The Wednesday AccrualNet Post (3-7-12) Family Matters

Last Updated: Aug 30, 2012

Originally posted by: Ellen Richmond, AccrualNet Co-Moderator, on the former AccrualNet site on Mar 08, 2012.

 

 

We counted lots of clicks on the blog post honoring African American History month - which included a hyperlink to a great video interview on minority recruitment with Dr. Lauren Wood. Always after those extra clicks, I went back to YouTube and found another powerful video called "Deep Water: Making Sense of a Cancer Diagnosis" told by Cindy Lollar of NCI.  She tells her "emotional story of wading into the rising flood of information about her mother's stage III ovarian cancer diagnosis." The story illustrates the difficult but important role family members can play in helping a loved one make informed cancer treatment decisions, including the possibility of a clinical trial. The story also describes how to contact the National Cancer Institute's Cancer Information Service for help in understanding cancer and available resources. NCI's cancer information specialists are trained to answer cancer-related questions by telephone (1-800-4-CANCER), LiveHelp instant messaging, and e-mail. There is no charge or fee for the service, which is provided in English or Spanish.” The impact of illness on the whole family and their potential role in treatment decisions probably can’t be overstated.--- I think this video could be used for both patient and staff education.

 

Your thoughts?

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Originally posted by: Anonymous on the former AccrualNet site on Mar 08, 2012.

that was a very moving video.

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Originally posted by: ellen on the former AccrualNet site on Mar 08, 2012.

I was very moved, too. When my own parents were sick, all the time that their nurses and docs spent with us (reviewing treatment options, etc.) made a huge difference.

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Originally posted by: Anonymous on the former AccrualNet site on Mar 12, 2012.

Great conversation! Ellen's post highlights the importance of the role of others - family members, friends, nurses - who support the patient in making treatment decisions. In many cases, that person is also the caregiver. See our blog post from May 25, 2011  for a related conversation.

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